A guardian or caregiver is a person who offers unpaid assistance or organizes for help to take care of someone with a disease or disability. Assistance presents in several types for caregivers. It can be spiritual, financial, or emotional. The best assistance is acquired from those who have ‘been there and can help you learn about choices for treatment, resources for guidance and support, and goals and outlooks for recovery.
It is convenient to forget to care for yourself, especially when you are taking care of someone else. It gets too difficult to concentrate on other responsibilities, such as work, family obligations, and other demands – and the pressure continues to rise. But there are other means to make time for yourself, as this is important for your own wellness. Despite the challenge and difficulty, always strive to find equilibrium between caring for your loved one and taking care of yourself. With this goal in mind, you will be less fatigued or miserable about caregiving. Don’t forget that making an effort to care for yourself is not at all selfish.
Individuals who are forced to play the role of a caregiver can potentially find that balance as they learn to deal with the responsibility given to them.
Caring For Yourself – Tips To Remember
- You can assist your sick loved one is thinking through his treatment choices, concerns, and goals during this tough time.
- The healthcare team can guide you through expectations and planning. Healing after treatment takes time, and it definitely helps if you are ready. Don’t hesitate to ask questions to the medical team.
- If someone gives help, say ‘yes’ if you want to. It is important and encouraged to accept help from those who want to give it to you.
- Get tips from individuals who are caregivers like yourself. Their past and current experiences are almost always very helpful.
- Make a schedule for your self-care day. You will be inefficient in helping others if you do not know how to take care of yourself efficiently.
- If you are sad when you think about your previous stress-free life, that’s normal. Just give yourself some space to grieve.
- Concentrate on what really matters most and find ways to love and appreciate the brief moments of happiness.
When Your Loved One Changes
Confusion, anxiety, anger, mood swings, and depression are typical symptoms for individuals diagnosed with a brain tumor. Personality changes result from the tumor, the treatment, or the patient running out of means to deal with the illness. Under all circumstances, these personality changes can be tough to deal with, whether or not they are minor or major.
Talk to your physician if you notice these kinds of changes. A lot of emotional swings can definitely be managed.
Managing Tough Moments
- Be empathetic with yourself. Allow yourself to separate your emotions from your actions.
- Do not let your negative emotions like resentment, guilt, or anger grow. Accept your feelings so that the problems can be addressed.
- Do not forget that you are not required to have all the answers or repair all that is broken.
- Find support groups that can help you learn coping strategies. You can start a family meeting and let the rest of the family know that you need help.
- Set boundaries. It is not a crime to say ‘no’ when you are unable to do something.
Making Crucial Choices
Frequently, a brain tumor makes it more challenging to think straight and process information. This might be because of the tumor pressing on and pressuring the brain, from simply feeling overwhelmed, or perhaps from the treatment. Whatever it may have caused, a family member or a loved one may need to become the patient’s care manager or advocate. If you need to become the decision-maker for your loved one’s treatment, keep in mind that you can ask questions, do some research, and seek support before making any major decisions.
A brain tumor is not similar to other bigger life events. It can be longstanding and frequently unpredictable. Try thinking through logical short and long-term expectations.
Simple Suggestions When Making Crucial Decisions
- Consult with the best doctors, counselors, and other medical professionals in your area for a second opinion.
- Learn more about brain tumors – their types, degree, location, treatments, and other goals for recovery, as well as side effects.
- Learn and understand the pros and cons of treatment options you find possible to do for your sick loved one.
- Make a list of your loved one’s needs and categorize the tasks that your loved one can do with and without your assistance.
- Identify and respect the wishes and abilities of your loved one.
- Set boundaries for yourself as well. Put a line between what you are capable of doing and what you cannot do for your loved one.
- Talk to a social worker or counselor. They can answer a lot of your personal questions.
It’s scary to think about a different future than what you had planned. It can also be hard to talk about sensitive subjects. Finding ways to have a conversation about what is actually happening does make people feel comforted and reassured. The talk usually leads to optimism and anticipation of the life that you have with your loved one. Often we want to spend quality time with family, as the rest of the members try to make peace with the situation.
If your family is having trouble doing this by themselves, talk to a therapist or counselor so that someone qualified and experienced can guide and walk you through the healing step by step.